Bridge game raises $6,500, awareness of tumor disease

A Cape Girardeau bridge game raised $6,500 to be donated to research on tuberous sclerosis, a little-known but common genetic condition characterized by seizures and tumor growth in vital organs that affects an estimated 1 in 6,000 live births.

The event was held March 17 at Dalhousie Downtown.

Two area children, Jackson Kozisek, 18 months, and Natalie Brown, 5, known to have the disease, face challenges regularly forcing doctors to monitor tumor growth and location.

Linda Tewis, Jackson's grandmother, said, "The entire event went well with more support than we imagined. Door prizes were donated, and when people who didn't play in the bridge benefit learned why we were doing this they donated generously."

At least two children are born each day with tuberous sclerosis. The disorder affects some people severely, while others are so mildly affected that it often is misdiagnosed or undiagnosed. Some people with tuberous sclerosis experience developmental delays, mental retardation or autism.

The tumors are benign, but still may cause problems by blocking the flow of cerebral spinal fluid, blood flow or too much of the retina in tumors in the eye. Tumors in the kidney may become so large they take over all the normal kidney functions.

There is no cure. Individuals with TSC can stay informed of the advancements by becoming a Tuberous Sclerosis Alliance member and receiving information and updates. For more information, call (800) 225-6872.