Gears keep cranking on statewide MS task force

The task force created by the state Legislature last month to identify quality-of-life issues for Missourians with multiple sclerosis is in its analysis phase.

"The Missouri Senate is committed to identifying the unmet needs of individuals who are affected by MS ... to enhance their quality of life," bill sponsor Sen. Jay Wasson said. "These citizens must have greater access to much-needed treatments and therapeutic options, regardless of how this progressive disease affects their day-to-day lives."

Neurologists, social service agencies and MS patients are teaming up with state legislators during the interim legislative session to establish a clearer picture of the evolving way people deal with the disease.

Multiple sclerosis is a chronic degenerative condition that affects the central nervous system. Patients diagnosed with MS experience a broad range of potential symptoms, from tingling and numbness to blindness or paralysis.

About 9,000 people in Missouri are affected daily by the disease, either personally or through a family member, and it costs an average of $69,000 a year per person, according to the The National Multiple Sclerosis Society. In addition to high medical bills, MS patients often struggle with employment.

The society disseminates educational materials for caregivers, helping patients recoup lost wages and advancing research, last year giving $4.8 million to support MS research projects.

The task force will not be spending any money. Instead it will focus on developing strategies to be implemented later.

Spokeswoman Sarah Gentry is confident the task force will generate solutions to help patients and caregivers. Modeled after successful task forces in other states, the committee hopes to develop strategies to give MS patients easier access to treatment and help maximize their independence.

"We're really excited that the Legislature is interested in getting involved in solving the problems surrounding MS," she said. "It's a really exciting time in MS research and there are a number of new therapies and projects in the pipeline. We're eager to see what they come up with."

The task force will present its findings to the Legislature in early 2015, when further action would be possible. To Wasson, the issue is important to Missouri.

"We need to support those affected by MS and do everything we can to make available new treatment options and provide assistance to those with this disease."

For more information about MS or to get involved, visit the National Multiple Sclerosis Society at nationalMSsociety.org or find your local Gateway Area Chapter at gatewayMSsociety.org.

tgraef@semissourian.com