Letter to the Editor

May is NF Awareness Month

Tuesday, May 11, 2010

I am 11 years old, and I have a genetic disease. There is no cure or treatment for my disease. My genetic disease is called neurofibromatosis. I have many marks that look like birthmarks. This was the doctor's first clue that I have neurofibromatosis. I have to go to special doctors in St. Louis every year. What I get scared about is that it will hurt me some day. Sometimes I have bad dreams about what could happen to me. I don't know anyone else who has this. This is NF Awareness Month for all the people who might not know that. I am one of the kids who is part of this month, but I bet there are more people with what I have. I wanted to share this with you in case you did not know that May is NF Awareness Month.