- Owner of Mary Jane Burgers & Brew in Perryville to open new culinary concept in Cape (9/15/17)3
- Man accused of setting fire to Delta bar; posted photos of it burning on Facebook (9/17/17)5
- McClure man accused of leaving children in hot truck while gambling in casino (9/19/17)1
- How the story of one dog is helping others (9/14/17)1
- Eyewitnesses testify about fatal shooting; men were using drugs, alcohol (9/14/17)
- Jury finds Harris guilty of murder, 3 other counts (9/15/17)4
- Retailer may come to Jackson; rezoning needed first (9/17/17)2
- New boutique store advocates for special-needs people (9/19/17)
- Planet Fitness to anchor Town Plaza shopping center (9/18/17)2
- Mo. conservation agents help fight fires in western U.S. (9/15/17)
Story sheds light on life in shadows
To the editor:
I am writing in regard to the Sept. 14 story about Graycen Beardslee and her genetic condition that required her to "live in the shadows" by Lindy Bavolek.
We met Graycen and her mom at Camp Sundown, a unique night-camp program free to families with children who can never be in daylight. Graycen is a delightful, normal young girl who, like all our XP (xeroderma pigmentosum) campers, only wants to fit in with her peers. This beautiful story is an excellent example of how well a school system, with the right caring parents and caring staff, is able to serve a special child in a ultraviolet-safe environment.
Congratulations to Graycen, her family and the school for making the environment possible for her, and congratulations to you as a valuable news source for raising awareness about such a rare condition.
CAREN MAHAR, Executive Director, XP Society, Craryville, N.Y.